INDSF provides support for a major epidemiological multi-center longitudinal research database initiative at associated Parkinson’s centers.
Project SUNSHINE tracks extensive demographic and clinical information, captured in real time at every patient encounter, including scales (UPDRS, Hoehn-Yahr, Gilman criteria, MMSE, Epworth, Schwab ADL, PDQ, AIMS/Dyskinesia), medications (i.e. dose, response, tolerability), motor fluctuations (i.e. onset, duration, severity), concomitant medical history (i.e. symptoms, illnesses, medications), and epidemiology (i.e. relatives, occupation, trauma, caffeine, tobacco, toxins). INDSF also fills unmet vital needs by providing educational, wellness, and supportive activities that are crucial to help patients, caregivers, and family members cope with the challenges that are encountered from diagnosis through long-term treatment for Parkinson’s disease.
Ongoing activities include: patient and caregiver support groups, educational lectures and symposiums, and physical therapy classes.